My soul is troubled and I am scared to death. My close friend and future sister-in-law just got on the list to wait for a heart. She turned 21 the day after she found out. I won't lie I am scared, but for her sake I am keeping my faith and praying to God everyday that things will work out to his will. Your page touched me deeply and my prayers and thoughts go out to you. I can tell that Susan was loved so much by so many people. I know that my friend is so loved too. It was just all so sudden and I worry that she is having problems adjusting. But then I see her smile and realise that she is the most innocent, loving person I have ever known. I want her to live, but sometimes I feel that that is selfish. What if that is not what God has planned for her. Who knows what the future holds. We just take this one day at a time...holding on with all of our strength and being her support...he reason to fight. God bless all organ donors and their families. And God bless you Andreas!
Good Evening, It is with tears streaming down my face that I try to write this, this evening. I could ever agree more about organ donation. I have had several friends whom lives have been safed. By others who have been kind enough to donate. I would do anything if I could donate any organ that anyone needed. But, due to several brain surgeries, and bouts with paratinitis, neurofibromatosis, and hdrocephalus. I can not donate any organ. But, I would do it in an instant if I could. I am so glad that everyone has made the commitment to donate any organ that is needed. I would also like to thank everyone who has put this story out on the net. I will be back often. I have been collecting recipes for over thiry years. I started doing this when my parents were told to pull me out of school, that is when they learned that I had neurofibromatosis, and hydrocephalus. Thank goodness they didn't listen to the doctors. They had me tested and were told that I would probably have the mentality of that of a six year old, for the rest of my life. After being tested it was discovered that I had the mentality of a nine year old. So, while I was not pulled out of school, I was allowed to do the work of that of a fourth grader. My parents were told to encourage me to do other things at home. Since I was bored in school. I had always wanted to play the violin, and take ballet lessons, as well as art lessons. So, I just started do a number of other things as well. I have been collecting recipes since 1967. And even to this day, I can not pass a cookbook by. I collect cookbooks from every place we visit. And I will be back very often. I hope that this finds you and every member of your families having a Healthy & Happy 1998. May God Bless you. Your Friend Always, Criste Reimer
Andreas, I found your page while looking for information about on-line support groups for heart transplant recipients. It was so sad to read about your loss of Susan. I know she was a very special person. You must feel you lost part of yourself when you lost her. Her story has helped me reflect upon a difficult part of my life. . . the loss of my husband, Jim, who was a heart recipient. Jim, died a year and two months after his transplant. Before his transplant, he was very sick and in CICU at Saint Francis Hospital. Heart transplantation was something I had only read about. I never dreamed it would be a reality for us. Jim was so sick that I often felt so overwhelmed by his condition that I wanted to wrap him in a blanket and take him to our favorite place in the mountains. Once there, I would sit and hold him, comforting him, until his pain and suffering ended. Fortunately, that was not an option. It was so difficult to see him suffer. We had learned to live from moment to moment and he never lost his since of humor. At one time he was taking numbers from the hospital staff to send to the Texas lottery. He tried to make everyone who came to see him feel comfortable with his condition. We both knew he would never go home from the hospital, again. While he was hospitalized we learned that Saint Francis was opening a heart transplant center. Jim was their first transplant. . . September 24, 1993. How brave he was to be the first! I must add, our son and I said "yes" before he did. Easy enough for us to do. He was on the waiting list for 12 hours. After the transplant, we made promoting organ sharing and comforting those on the waiting list our top priority. Although he was able to work in a little golf now and then. His recovery went very well and our lives took on new meaning and were changed forever. That final year of our lives together was unbelievable. We had always been close but now we were drawn even closer to each other. Our last year was one of our best. . . no meetings, climbing to the top, keeping up with the trends. . . just living life as it was intended. . . being there for our families, friends, each other. . . and helping others. He went into cardiac arrest and died on Thanksgiving morning 1994. I am forever grateful for the transplant and that wonderful last year. He often said no matter how short his time he would do it again. So would I. Thank you for allowing me to share with you. God Bless you. Shari S.
Dear Andreas, My prays are with you. I just got my computer and am just now connecting with the internet. One of my 1st searches was to Susan's site. You see my husband is on a transplant list. It is so sad that I find this way. I am moved to tell you that my grandmother's name was Hattie and so was my husband's grandmother. Plus my email is named in honor of our cat. Susan seemed to be very fond of cats. My husband, Greg, found out in April of '96 that he had congenative heart failure. We celebrited our second anniversary just 3 weeks later. Greg is doing fine at present, but he's had his moments. We will continue our search for others like Susan through the internet. In these last two years we have yet to find a local support group or counselors that deal directly with heart transplant issues. To be honest though, we have not looked very hard. Greg seems to be doing so good under the circumstances, both mentally and physically. Please don't get me wrong, my sweety use to be a very active black belt in Tae-Kwon-Do. Now he can barely swin one lenght of the pool before he must stop for a break. He walks a very slow mile on the treadmill. I am just grateful he can do that. From what I have seen from Susan's site, she had a lot of support. I pray we are even half as lucky in our search. May The Angels Be With You Always, Robbie & Greg
Great! I had a good time on your homepage. I hope all the world has a good feeling on this site. And I invite you to my homepage. My homepage URL is http://inote.com/~solokim ----> From Republic of Korea.
while i was searching for a web site, i stumbled upon susan's heart history. I began to read it and thought it was so sad. She must have been a very special person and it's obvious she and andreas had great courage. When i was reading a later heart history, i hadnt realized that she'd died. i was extremely saddened when i found out and wondered why such a wonderful person had to be cut short from her life.
My 4 year old had a heart trans plant 3 yrs ago. She is doing well, but is very small for her age and gets frequent infections due to the medications. We have almost lost her a couple of times. I don't know what I will do if we do lose her, but I have tried to understand why this happens . it helps to just enjoy each day ond not dwell on the future, but always have hope for the future (of medicine and research). We are all going to die someday, some of us just do it sooner than others. Life goes on whether we want it to or not, and we WILL all be together again someday. Peace and Strength be With You.
I find this site totally amazing. I'd be far to embarassed to tell you what it was I was searching for, but this came up as one of the hits and I couldn't help but get involved. At first I was unsure of what it was all about and scanned around. I didn't even realize Susan had passed away as I read. I was so deeply saddened by the news. I am so sorry for everyones loss, but delighted by the out pouring of support and the community of love shown here. I always have felt the donor program was important, and I am a donor. I sure hope things have gone well for Andreas and I'm sure I'll be back in just to look at how often someone else trip across this treasure you have maintained here. We all should be as lucky as Susan was to have such love in a time of such difficulty. This makes the world seem like a lot warmer place. Peace be with you all.
I am only but a young 17 year old girl. Many of my friends and even family thought that I was crazy for wanting to donate as much of me as possible after I die. But I signed my donor card with pride. I spoke with my parents and they now agree with me and promise to respect my wishes. It is unfortunate that so many pass away. If there was one thing that I could do I would. The best thing that anyone can do is stay in good shape, take care of ourselves (so we can donate) and live every day to the fullest. I may not have known Susan but I can tell by what everyone has done for her, during life and after death that she was a very special person and will be missed by many!
Although I don't know the details of your illness or over how long a period of time your ordeal lasted I must say I have great respect for you and your courage. My son Matthew was born with a single ventricle and although the Dr.'s hoped as he got older and stronger they would be able to do other surgery to make his heart as normal as possible, that never happened, he only gained 15 oz.'s his 1st 10 months and was never strong enough to make it through a surgery that they weren't sure wold "fix" him. I cant say it was a hard decission for me and my husband to make, we knew it was the only decission to make. He is now 5 1/2 and has never had even a single bought of rejection. It is because of people like Susan that Dr.'s learn so much to help the next transplant recipient live a much fuller and normal life as possible. Again, Susan you have my respect and my undying gratitude and know that your contribution to this world has impacted so many lives and we are all thankful to you and your family for sharing a little bit of your life with us.
I don't know if you will get this. I had to write to say how moved I was about yours and your wife's story. I have a special place in my heart for organ recipients. My husband had a heart transplant 9 years ago, and did very well for 8 of those years. He died suddenly last July of a massive heart attack - very unexpectedly. Our 6 year old son is a legacy for my husband, to live on.....
SUSAN,FAMILY & FRIENDS, UPON READING THIS I HAVE FOUND MYSELF "AT PEACE" FINALLY WITH THE FACT OF DONATING MY ORGANS.......EACH LIFE THAT HAS LIVED ON THIS EARTH WAS INDEED HERE FOR A REASON.....ONCE SOMEONE HAS THE COURAGE TO MAKE A STATEMENT...OTHERS WILL FOLLOW......AND BRING SOMEONE ELCE HAPPINESS..... THANK YOU ....... GOD BLESS YOU SUSAN..... THANK GOD UP THERE FOR ME...FOR BRINGING MY SOULMATE TO ME FINALLY..... AND THANK YOU TO SUSAN'S FRIENDS AND FAMILY FOR BEING SO OPEN TO THIS SUBJECT.. IN RETURN.....I PERHAPS WILL SAVE ANOTHER'S LIFE ONE DAY....... WELL DONE.... SINCERELY YOURS, REBECCA LEIGH EMMETT
I am a 22 year old college student attending Southwest Baptist University in Bolivar, Missouri. My mother had a heart transplant 2 and a half years ago and ended up dying of cancer. It was a spetacular thing to go through. While watiing on her to get her donar heart, we (The SPellman Family) were able to form a bond with the other families that were also having a family member receiveing an organ transplant. MY mother successfully had her heart transplant and died 8 months after with cancer.
Andreas, I am a medical assistant instructor for Visalia Adult School in Visalia, CA. My students have been working on a project regarding cultural differences regarding organ transplants. One of my students researched people who had had a transplant or who were waiting for a transplant. Needless to say we stumbled across your wife's beautiful pages. What a blessing she must have been to you and your family. I thank you and admire you for letting others (such as my students) read her courageous story. My heart and prayers go out to you. Please let me know how your life is. My students would love to hear from you. Take care & once again, thank you. Mary Kay Akins Visalia Adult School
It is now Thanksgiving Day, a time to rejoice and a time to remember. I think it is very important for all people to remember those who are not so fortunate both in terms of health and happiness. The Donor Card program can be the best way to help those in need of organs for transplant. It takes only a few minutes, but those minutes can make all the difference for a person like Susan. Susan, I'm sure, would be proud !
I sorry to hear of your loss. I have seen many families lose their children to transplants. I now how hard families try to comfort their dying without loosing hope. I am also waiting for the gift of life. I made my decisson to go a head with a heart& lung transplant. I am still waiting for a donor. I am deeply sadden for your family. I know how hard it is on the family to try to find everlasting hope.You are truly a courageous family.
I AM SORRY TO HEAR ABOUT YOUR LOSS. SUSAN MUST HAVE BEEN A VERY SPECIAL PERSON. WHILE READING ABOUT SUSAN I NOTICED SHE WAS LAID TO REST THE SAME DAY MY DAUGHTER WAS BORN.SHAYLA DAWN GIESE WAS BORN JAN. 31 1996 IN EVANSVILLE IN. [WITH A HEART DEFECT]. SHE HAD TRANSPOSITION OF THE GREAT ARTERIES SHE WAS NOT GETTING ANY OXYGEN TO HER BODY WITH EXPERT ADVICE SHE WAS LIFEFLIGHTED TO KOSAIRS CHILDRENS HOSPITAL IN LOUSVILLE KY. TWO DAYS LATER SHE HAD A 9 HR SURGERY TO RECONSTRUCT HER HEART THANKS TO THE BEST HEART DOCTORS SHE COULD HAVE THE SURGERY WENT GREAT THEN 5 DAYS LATER HER HEART EXPLODED FOR UNKNOWN REASONS ONE OF HER MANY GREAT DOCTORS WALKED IN AND OPEN HER UP AND MASSAGED HER HEART THEY COULD NOT GET HER BACK FOR HALF AN HOUR UNTIL SHE WAS HOOKED UP TO AN ECMO LIFE SUPPRT SHE LAID WITH HER CHEST OPEN AND ALL THIS TUBES SEWED TO HER HEART FOR 10 DAYS. IF YOU EVER STOP IMPROVING THEY TURN THIS HIGH TECH MACHINE OFF THE DAY THEY TOOK HER OFF THEY DIDNT THINK SHE WOULD MAKE IT. 1 MONTH LATER WE LOST HER AGAIN THEY STILL DIDNT THINK SHE WOULD MAKE IT. AFTER 3 MONTHS STILL IN THE HIGH TECH NEONATEL INTENSIVE CARE THEY STILL DIDNT THINK SHE HAD A STRONG ENOUGH HEART TO SUSTAIN LIFE. TWO WEEKS LATER SHAYLA CAME HOME. WITH A BIG PARADE WELCOMING HER. IT IS A MIRICALE WE CAN NOT THANK EVERYONE ENOUGH FOR ALL THE PRAYERS AND SUPPORT AND TO MY WIFE WHO WAS IN OUR CAR 2 HOURS AFTER SURGER [WITH NO MEDICATION] ON A 2 HOUR DRIVE TO LOUSVILLE MY WIFE DID NOT COME HOME FOR 2 MONTHS AND THEN FOR ONLY 2HRS AFTER 2 WEEKS I CAME BACK TO TAKE CARE OF OUR 6 YEAR OLD BOY WE DROVE BACK AND FORTH 4TIMES A WEEK. I ALSO HAD TO COME TAKE CARE OF MY GRANPA WHO WAS DYING MY GRANPA DIED THE WEEK BEFORE SHAYLA GOT HOME HE NEVER GOT TO SEE HER. WE HELD SHAYLAS HAND EVERY MINUTE OF EVERY DAY FOR 3.5 MONTHS MY WIFES DAD WAS THERE ABOUT THE WHOLE TIME AT 54 YEARS OF AGE HE DIED SUDDENLY THE WEEK SHAYLA CAME HOME SHAYLA IS ON MONITORS AND HAS A LONG WAY TO GO IF HER HEART IS NOT STRONG ENOUGH WHEN SHE IS 2 A TRANSPLANT MIGHT BE AN OPTION. ON JAN 31 1996 A VERY SPECIAL PERSON WAS LAID TO REST AND A VERY SPECIAL ONE WAS BORN. I WISH I WOULD HAVE KNOWN SUSAN EARLIER. GOOD LUCK TO ALL OF YOU AND THANK YOU FOR YOUR STORY. THANKS LARRY GIESE 325 N 5TH ST ALBION IL. 62806
Dude, is this the same andreas that was on irc a long time ago? Well if so .. hey.. this is a sad page.. man .. sorry... anyways.. how are you? I have not heard from you in a long time. I'll talk to you later.. please e-mail me back. Oh to susans parents, sorry I hate to hear that someone has died of an importantance, and life is important to me, make the most of it don't let your dreams cary away, I don't know any of you, I like to make friends, and I think the world should take into concideration, don't kill each other, instead learn to love and life will be more fulfilling. Peace. I'm outie. E-mail me if you have any questions, or you can find me at http://java.abac.com or if that doesn't work http://sun.abac.com. Sorry I re-wrote this msg.. heh.
Dude, is this the same andreas that was on irc a long time ago? Well if so .. hey.. this is a sad page.. man .. sorry... anyways.. how are you? I have not heard from you in a long time. I'll talk to you later.. please e-mail me back.
Our hearts also seem to become weaker when our loved ones pass away. I watched my brave sister Carol struggle through her whole life with surgery after surgery, megadoses of pills, rehab, treatment, etc. and finally pass away. Carol waited at Columbia Presbyterian in New York City for three months, and passed away before receiving a heart. More information is needed! It's hard to watch so many people seemingly "kill" themselves everyday with bad choices, and to know someone struggling everyday to stay alive. Carol died in 1993. She was my only sister and I still miss her a lot. Thanks for letting me vent!
Andreas, I know how you must be feeling. I received a new heart in December of 1994, and have done well since, it is truly a miracle. I was very sick before receiving it, and didn't really think I would get it in time. I had to face the alternative, and with all the people praying for me, and encouraging me, I was no longer afraid. I knew where I would wake up if I didn't make it. Many thanks to those who take the time to sign their donor cards, and discuss this with your families. This is the ultimate " gift of love ", and I am sure God recoginizes this with esteem! Ed Dougherty
I was very touched by this entire web site. I read the messages with rapt attention and was shocked and saddened to hear of Susan's death. What I would most like to say is that I was constantly amazed and encouraged at her courage and spirit. I admire her very much--I still doo. And kudos to Andreas for doing this, tough as it must have been
I'm really going to miss her. She was the leader of Alt. support.cancer. She knew it all: the physical, mental, physcological, fiscal, insurance, law, every aspect of the disease and would share it with us. She would point of the "quacks". I learned a lot about people in wheelchairs with her correspondences. I'll say a prayer for you. Love, Sean
Andreas, I did not know Susan or you, having only stumbled, as many did, I suspect, onto the web page updating her condition. I found myself moved and involved in a strange way, but after some thought, it is clear that she was a warm, lively and talented person stricken by the random evil of luck. However, I hope you have communicated to others the importance of organ donations (both my wife and I have made such arrangements). I cannot imagine what I could say to help, but know that others feel for your loss.
I had exchanged notes, read her home page, and seen pictures of her kitties. Susan was one of the people in the group who came (comes) across with such spirit and warmth. She will be missed by so many people, but our memories of her will last indefinitely. I have felt strongly about being an organ donor for many years, and situations like Susan's just makes the importance of taking care of making arrangements now even more urgent for all of us. In loving memory of Susan. . . .
Tapestry of Life How well can you get to know a person via this new invention, the Internet? You can't hear a voice and most of the time you haven't the slightest idea what the person looks like. But you communicate nevertheless. You do, after all, get a sense of what the other person is like. But still, that doesn't necessarily make you "friends". So why can't I stop crying? Because I do feel as if I knew her. I believe that life is like a tapestry, and every person we come into contact with is a thread that makes the tapestry richer. And a thread has broken. I never knew Susan, but I will never forget her. I am heartbroken for Andreas, but I hope one day his grief will be lessened a tiny bit by the knowledge that he shared a wonderful love in his lifetime. Shalom, Shoshannah Hannah.
Tapestry of Life How well can you get to know a person via this new invention, the Internet? You can't hear a voice and most of the time you haven't the slightest idea what the person looks like. But you communicate nevertheless. You do, after all, get a sense of what the other person is like. But still, that doesn't necessarily make you "friends". So why can't I stop crying? Because I do feel as if I knew her. I believe that life is like a tapestry, and every person we come into contact with is a thread that makes the tapestry richer. And a thread has broken. I never knew Susan, but I will never forget her. I am heartbroken for Andreas, but I hope one day his grief will be lessened a tiny bit by the knowledge that he shared a wonderful love. apparently wonderful love, and
I followed the updates provided by Andreas. Mimi, and others with laughs and prayers, fear and prayers, and, finally grief and prayers. I have followed Andreas' suggestion to let the people in my life aware of how much they mean to me. I remember the first time I discovered rec.food.cooking It was quite a few years ago now, and the first messages I read were part of one of the exchanges between Susan and Stephanie. I was a bit taken aback, but, then, it was Susan who was the first to welcome me and made me feel like one of the gang. In the past few years, with a service provider that leaves large gaps in the newsgroup messages, I missed a lot and was not aware of the seriousness of Susan's condition until the beginning of January. I really believed she would be back with her wonderful wit and vast knowledge to share with us. I'll miss her so much. My husabnd and i have been organ donors for years. We will be donating blood as soon as we can (we last donated on Christmas Eve and still have another week or so before they'll let us. It's the only gifts we can give Susan now.
Andreas, I met Susan through sac.general. We shared a love of cooking, restaurants and farmer's markets. We were never to meet in person, but I came to respect and admire her through her amusing posts and private email. You and Susan, by sharing your story and love, have deeply touched me. I now have a much deeper appreciation for life and my loved ones. You have reminded me what is truly important in life. Farewell, Susan. I'll miss you.
What a tragic loss of a remarkable woman. May you rest in peace Susan. Tomorrow I am becoming an organ donor.
I, like so many others, have been profoundly touched by Susan and Andreas' sharing of their lives and love. Caught up in their love and their hope, I somehow never really considered that their story would have anything other than a happy ending. Yet that is what I think Susan's life seemed to be about - the idea that one should put everything into living until it is time to die. I am so very sorry that Susan's time to die came so young. I can only begin to imagine the searing pain and the intense loneliness, among so many other emotions, that Andreas might feel. I hope that the knowledge that Susan lives on in all those whose lives she touched is of comfort, and I send all my thoughts of peace to Andreas and Susan's family.
Andreas- I've thought about little else but Susan since I read your final posting last night. I've never kept up well with rfc, but I have checked regularly to hear about her progress. Thank you for bringing so many strangers around the world together in love. I wish you good luck in the time ahead - I will be thinking of you. Your boundless love for Susan which shone through in your postings is a standard for us all to meet in our own relationships.
I read today in the Sacramento Bee the story of Susan and Andreas, thus my internet tribute to the both of you. I read with amazement the strength that this incredible woman and her devoted husband possessed. Thank you for letting me into both Susan's and your life. The love you have shared for this beautiful woman is to be envied by all. It has been many years since I have been so touched by an individuals struggle for the one gift we take for granted most - Life. I salute you Susan and Andreas!!!
I knew Susan as a hot-headed foodie on rec.food.cooking. Our last email exchanges were hostile, and it felt strange to remember my anger at her, yet sympathise so deeply with her illness. I sent a reconciliatory postcard, and keep wondering whether she received it. Suddenly she was gone. I too felt a sense of loss with Susan's death, and like in many others the honest and loving accounts of her progress triggered deep emotional responses in me. I finally got around to becoming an organ donor. I take my loved ones less for granted than before. Yet Susan was almost a stranger, like millions of other strangers around the world. I wanted her to live through the operation, but my attention was only drawn to her because of her privilege in having friends to tell her story. It is an important story, but it is not important to the world because of Susan herself. Her story can sensitize us to many important things in our own worlds. Many have become more aware of how important blood and organ donations are, myself included. But I sin- cerely hope that all of you who have cried for a woman you didn't know, will look around and feel compassion for others who suffer. To give away your body parts at death is noble, but many people who beg in the streets don't have access to even basic medical care. With your heart set on a hypothetical "Susan", will you turn down the poor black woman who begs you for a quarter on your way to work? Will you support the charities that help the poor get treatments for simple things like pneumonia and vaccinations? So many, many people can be helped to better lives for the cost of one heart transplant. The volume and character of the support given to Susan via r.f.c. is quite amazing; so many people praying and wanting to help. I sincerely hope that all this compas- sion will be redirected to other strangers who are still alive. I am sure that Susan would have liked that thought. Katrine
As a professional chef who lurked about sac.gen, rec.foods, et al, I didn't always agree with Susan's posts, but she always made things interesting in those newsgroups. The loss of any intelligent discourse in this world is tragic, your loss is all of ours.
Andreas and Family, My heartfelt condolences to you. As an infrequent poster, my name is not familiar, but Susan's certainly was, and she will be missed by many. Thank you for sharing your and Susan's courage with us through this very difficult time. Please know that so many of us are with you in thought and prayer. God Bless. Cindy
To Susan: Forty years ago, transplantation was a dream in the minds of a few visionaries... Thirty years ago, the first heart transplants were being attempted... Twenty years ago, the barrier to transplantation was our rudimentary ability to control the immune system... Ten years ago, that barrier had fallen, and a new one appeared: organ shortage. You, noble spirit, were a front-line trooper in the assault on that last barrier And, alas, you were lost in that last, brave effort. It was not in vain. For every donor card signed because someone was touched by your valiant struggle Someone shall live who would not otherwise. And ten years from now, your shining spirit will be the standard for the triumphant drive Through that final barrier: Fall it will, and none shall mourn for it! But today, I mourn for you. HaMakom yenachem eschem b'shaar kol ovlei Tzion v'Yerushalaim. May the One comfort you, Andreas, among the mourners of Zion and Jerusalem. (traditional Jewish sentiment expressed to mourners)
Andreas and family of Susan thank you for sharing your lives with the rest of the world and for sharing your love for susan with us. i looked forward to coming home and reading what everyone had to say. may either of these two poems help you and yours through the coming years and especially this coming year. i will always have a soft spot for susan and her courage, love and strength to speak more of donating and for her zest in rfc. thanks andreas, goodbye susan ------------------------------------ Do not stand at my grave and weep I am not there. I do not sleep. I am a thousand winds that blow. I am the diamond glint on snow. I am the sunlight on ripened grain. I am the gentle autumn rain. When you wake in the morning hush, I am the swift, uplifting rush Of quiet birds in circling flight. I am the soft star light at night. Do not stand at my grave and weep. I am not there. I do not sleep. ------------------------------------------------ I'd like the memory of me to be a happy one. I'd like to leave an afterglow of smiles when life is done. I'd like to leave an echo whispering softly down the ways, of happy times and laughing times and bright and sunny days I'd like the tears of those who grieve, to dry before the sun of happy memories that I leave when life is done. ---------------------------------------------- authors unknown
To Andreas and all the rest of us who join Susan's family: May we continue with even a little of the courage, humor, and love Susan shared with us all these years - even though some of us "knew" her for a only few months. Andreas: Your generosity in sharing and your love for Susan shine for all of us. We'll be joining you in saying a kaddish Wednesday afternoon and again through the week and hoping we can share some of Susan's peace. Susan Aitel and Jonathan Goldman
Susan truly was...IS a wonderful person who inselfishly shared with us the pain and agony she endured to send up a wake-up call... it could happen to you. She may have saved countless lives, by telling people to become a organ donor. I only knew about Susan's plight little more than a week ago. Her story touched me, deeply...so much in fact that I am going to fill out my organ donor card this week. I am going to miss her, A LOT. You will too. We owe it to Susan and for the other "Susans" waiting for "the gift of life" to please sign that donor card, soon. For Andreas and for all who loved and took care of Susan, may God bless you. Our prayers are with you. Peter, Malli, Kyle and Kevin George Stoughton, Massachusetts
Andreas, the saying that one child belongs to a whole village comes to mind. Susan became that one child who belonged to the whole world by the very nature of your sharing. Your love for each other and all of God's living creatures transcended all else. I thank you for letting us be touched by it. They say there are no strangers, only friends that have not met yet. You and Susan are my friends and she'll not be forgotten.
Andreas, let the outpouring of sympathy and love for both you and Susan help you through this difficult time. I know that your fond memories of Susan will be a comfort for you for the rest of your life. Susan was a remarkable person in her ability to elicit love and respect from hundreds and hundreds of people the world over. And your strength and love for her has been an inspiration. Stay strong my friend.
good luck andreas. you and your family, as well as susan, are in my prayers. be at peace. -j.
Andreas, My heart goes with you. Susan is going to be missed by all. She left a wonderful mark on this world. Love and strength... Janis
Dear Andreas, I did not know Susan, she did not know me. I joined rfc shortly before she was hospitalized. I was able to see the wit and sensitivity and the joy of life she shared. I followed your ups/downs with the transplant faithfully and was deeply saddened to hear that Susan had finaly reached the end of this journey. I would like to share with you the words to a song, sung by the folksinger Holly Near. These words have gotten me through the many losses I have recently faced (12 deaths in 5 years). > They are falling all around me, > The strongest leaves of my tree. > Every paper bring the news that, > The teachers of my sounds are moving on. > Death comes and rests so heavy, > Your face I'll never see, I'll never see you any more. > > But you're not gonna really leave me, > It is your path that I walk, > It is your song that I sing, > It is your load that I take on, > It is your air that I breath, > It's the record that you set that makes me go on. > It's your strength that helps me stand > You're not really, you're not really gonna leave me. > > I will try to sing my song right, > Be sure to let me hear from you. -Bernice Johnson Reagon Peace to you Andreas and to Susan
It is with a sorrowful heart that I say good bye to SusanA. Andreas, thankyou so much for sharing the deepest part of your life. Susan will be missed and I pray that you will always remember the good times you shared. You and your family will be in my prayers. LIZ
I am so sorry to read the final update. Susan meant a lot to all of us on rec.food.cooking, and her voice will be sorely missed. Thank you to Susan for making her illness an occasion for promoting organ donation awareness. And thank you to Andreas for sharing the hope and the pain of this time with all of us through updates on the web and on the newgroup. There are a lot of people around the world grieving today for Susan Hattie Steinsapir. Susie Milner
I am very sorry with her death. Thank you Andreas giving the story to all the readers of the net, even to us in Budapest. My question: has the Internet changed her therapy even in the slightest degree? I mean: decision making could be hard if all the steps are followed by thousands. Or: publicity made no any significant role. How would answer the doctors?
I'm a regular lurker on rfc; I didn't know Susan, but like many others I've been checking the web site and the newsgroup daily . I miss her already. Much love to you, Andreas, and to both your families.
Andreas: We were so sorry to hear of Susan's death last night. Her efforts on the net will be sorely missed.
I cannot express in words how sorry I am. My tears haven't stopped since I read that Susan was gone. I never knew her, but you both touched my life in a way that will never be forgotten. You shared all of these days with us who were reading out here. God bless you! You have reminded me just how precious life really is. Midgie Bardo
Although I never really "knew" Susan, I read and enjoyed many of her posts on rec.food.cooking, and I will miss her. Thank you Andreas, Mimi and JB for bringing the story of her struggle for life to all of us out here. And a special thanks to Susan, not only for her presence on rec.food.cooking, but for impressing upon us all the need to donate blood and sign our donor cards. I rarely give blood because I never seem to have the time, but rest assured that I will find the time now. Goodbye, Susan. You will be remembered.
I have been reading and silently praying (as lurkers do) that Susan would make it, but God had other plans. My thoughts are with you and your family today - you have all been very strong and now it is time to rest. When I go home to my family this evening I will hug and kiss them a little harder thinking of Susan.
Andreas,I too logged in daily hoping for good news! Susan was a "stranger" to me yet here I am in Lincoln Nebraska mourning the death of this lovely "stranger." As a regular "lurker" in rec.food.cooking, it never really occured to me how many "friends" I've made there. You have my deepest sympathy.
I've signed up to donate a pint of blood on January 12 at 1:00 p.m. My commitment/memorial to you and Susan will be to donate blood until I've donated 15 pints (what seems to be 1 days' worth of blood for Susan in these past few days). Peace be with you. Susan is already at peace.
Andreas, I love all that Susan did for rec.food.cooking. She was a wonderful internet friend to many people even though formal friendship never occured. She has inspired me to cook. I thank you for sharing your sorrow with us all. I pray for you and for both of your families in this time of mourning. I wish you the best.
Andreas I just wanted to say thankyou for sharing with us. My thoughts, prayers and condolences go out to you and your family. Susan shared herself on the net. Her love of the cats and their antics plus the sharing of recipes was a big part of rfc. The net makes the world a smaller a smaller place and brings us together in our sorrow. Rest peacefully, Susan. The struggle is over. Sue Callaway Toronto, Ontario
Andreas-- There's never a good time and it's never easy. The love you and Susan shared will always be there. And memories are wonderful. I will pray for you both. Judy
Andreas; I, along with thousands of others who logged in daily (or even more often) hoping for good news, am saddened to hear of Susan's passing. Strange as it may sound, I am glad that through the net I am able to share your grief. I hope that the efforts of you, Mimi and others to communicate this private event so publicly will pay dividends through increased awareness of the need for organ donors. In an earlier message I said the WORLD was watching and praying. Now the WORLD is grieving. I hope you take some solace from the thousands of friends you have made throughout Susan's courageous struggle.
Goodbye Susan Hattie. You will inspire me to endure.
Please accept my deepest sympathy for you and your family in your bereavement. I enjoyed Susan's contributions to rec.food.cooking, and will miss them. They say the internet is impersonal and isolates people from each other. This is definitely not true in relation to Susan and those in rec.food.cooking who "knew" her. She will be greatly missed. I am mourning for her way up here in Victoria, British Columbia, Canada. To Andreas and his family and her family, I wish you God's blessings and peace. You are all in my thoughts constantly. May God be with you. Julia Trachsel Victoria, B.C. Canada
susan shared the joy of living with all of us lucky enough to share a newsgroup with her. now, she has shared the courage and dignity of her passing. we are grateful. because of her, there are many new organ donors, many new blood donors, and most importantly, many who have realized the brevity and preciousness of living and loving in this world. i am one, and i am thankful. andreas, when i lost someone i loved beyond everything, i came across a saying that comforted me, and i would like to share it (paraphrased because i don't remember the source): "do not hurt for injustices in life, what the caterpillar calls death, the master calls a butterfly". i wish peace for you in this time, and i'm so sorry for your loss.
We knew of Susan from her many thoughtful postings to the Organ Transplant Newsgroup. She was a sweet voice always offering a cheerful word. She will be greatly missed. We offer condolences to Andreas and Susan's family.
I came to the cooking newsgroup when your wife was already hospitalized. I was overwhelmed by the emotion that brought out in people, a strong, positive, joyful emotion. I am almost weeping now, I never read a post of hers, just know her through others. God bless you and keep you strong.
Susan made rec.food.cooking a nice place to be, even for a lurker like me. Though they may not all stand up to be counted, thousands of people all over the world will remember Susan and keep her in their hearts. I don't know if there is anything after death. If there is, then we will someday all be in the same place together and be reunited. I used to give blood just because "somebody has to do it." But now I'll remember Susan. I wish she could have stayed with us longer, we need all the nice people we can get.
Thank you, Susan and Andreas, for sharing your selves and your love with the rest of us. Rest gently, dear Susan.
Susan's journey has been such a blessing to so many. We know she is now in a better place where her heart will always beat strong and true. May God bless Susan and Andreas and their generosity in sharing their lives with us.
Dear Andreas, We will all miss Susan. I shared the love of food and cats with her. You both were wonderful to share your experience with the world- there are more organ donors now. Let the cats give you their purring comfort. I know you will receive some comfort from your families. Love, Katherine
Susan will live in our hearts, and may she watch over you, Andreas, and live in you forever. "Our two souls, therefore, which are one, --Though I must go, endure not yet A breach, but an expansion, Like gold to airy thinness beat." John Donne
Goodbye Susan. We will always love you. It was our privilege to have known you.
Thank you Andreas for being there for her.